UK-CAB 36 Meeting report

Making the most of your GP

22 October 2010
At the MRC Clinical Trials Unit, 222 Euston Road, London, NW1

Programme:

09:30-10:00 Registration, refreshments and expenses
10:00-10:05 Welcome and UKCAB updates
10:05-10.30 Pre-Meeting for ViiV Healthcare – Brian West
10:30-11:15 Session One – GP specialty for HIV patients – Dr Surinder Singh, Senior Lecturer in General Practice
11:15-11:30 Break
11:30-12:00 Session Two: Accessing primary care – Angelina Namiba, Positively UK
12:00-12:45 NHS choices – Hilary Curtis, BHIVA Audit Committee
12:45-14:00 Lunch
14:00-15:30 Community meeting with ViiV, Q & A
15.30-15.35 Break
15:35-16:30 Conferences Feedback: Vienna, BHIVA – Silvia PetrettiUKCAB AOB
16.30 Close

Presentations

General Practice and HIV/AIDS

First slide of General Practice and HIV/AIDS
Download General Practice and HIV/AIDS presentation [508 Kb]
Dr Surinder Singh, Senior Lecturer in GP, Research Dept of Primary Care and Population Health, University College, London

Accessing GP Care: the patient’s perspective

First slide of Accessing GP Care
Download Accessing GP Care presentation [656 Kb]
Angelina Namiba, Project Manager, Positively UK

Outcomes in HIV

First slide of Outcomes in HIV
Download Outcomes in HIV presentation [72 Kb]
Hilary Curtis, BHIVA Clinical Audit Co-ordinator, speaking in personal capacity

ViiV Healthcare

ViiV Healthcare UK UKCAB, 22nd October 2010

Download ViiV Healthcare presentation [3.3 MB]
These handouts have had the data discussed under confidentiality removed.
Eric Le Fevre, UK Medical Director, and Anna Lawson, Medical Science Liaison Adviser

IAS Vienna 2010

First slide of IAS Vienna 2010
Download IAS Vienna 2010 presentation [72 Kb]
Paul Clift, Caldecot Centre

Background reading

GP Access:

Managing HIV Positive Individuals in Primary Care

http://www.patient.co.uk/printer.asp?doc=40024602

Living with HIV and GPs

http://www.tht.org.uk/howwecanhelpyou/livingwithhiv/healthcare/privacyandyourgp/

NHS Choices:

The new government plans to bring about an “NHS information revolution”, giving people access to data about hospitals and health services in the hope that it will help us choose where to go for treatment, and that this will drive up the standard of care. The government also say that they want the information they provide to be “meaningful” to patients. So what information about HIV services would be useful?

Most of the information provided will be about the “outcomes” of healthcare (e.g. how many people got better after being ill). Collecting reliable information about outcomes is not straightforward and Hilary will explain some of the challenges:

  • Measuring process or measuring outcomes: pros and cons.  Existing and proposed indicators in HIV.
  • Why outcomes vary: random fluctuation, reporting bias, measurement error, case-mix or quality of care?
  • Management by outcomes: if you can’t measure it, does it matter? Perverse incentives?

Article in the Guardian newspaper:

http://www.guardian.co.uk/uk/2010/jul/12/andrew-lansley-nhs-information-revolution

Vienna Feedback: Non-technical summary by Simon Collins, i-Base

http://i-base.info/home/ias-2010-report-non-technical-summaries/

Download report as a pdf file [217 Kb]

Financial support

The UK-CAB receives unrestricted funding from some pharmaceutical companies towards the direct costs of holding four meetings each year. This funding supports the travel and accommodation costs for members to attend from outside London, plus the cost of catering.

The content, programme and agenda for meetings is decided by the UK-CAB steering group in consultation with the wider membership. Funding is unconnected to meeting content.

We believe that manufacturers who currently develop and market medicines have a responsibility to actively engage with advocacy organisations and that HIV positive people and their advocates should be able to directly question manufacturers about the safety and efficacy of their products and proposals for future research.

For a list of companies that support the UK-CAB please see the “about us” page.

 

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Published: October 22, 2010
Last edited: August 13, 2013