Background

Since the first meetings in 2002 the UK-CAB has developed to a network with more than 790 members from over 120 organisations.

UK-CAB members are now formally involved in all activities run by BHIVA including conference programmes and national treatment guidelines. The CAB meets with all research-based companies and has developed connections with national and internationally recognised experts who present trainings at our meetings.

CAB members have a wide diversity and depth of individual experiences. There are also very different levels of involvement in the range of activities that the CAB is involved in. Some people use the forums to stay connected and up-to-date and others come forward for higher profile activities.

The NHS is going through great change.  To address this, as an activist network, the CAB is organizing intensive training for activists now working in new situations in healthcare. 20 to 23 CAB activists – new and experienced – will be trained in this retreat.

Outcomes of the training:

  • To develop a pool of advocates with stronger advocacy skills, confidence and enthusiasm to take up CAB roles as patient reps on study committees, BHIVA guidelines, etc.
  • Advocates with greater confidence and understanding of HIV treatment, research and science.
  • Advocates who represent from patient forums from their treatment centres.
  • Advocates who take up active roles in UK-CAB working groups.

Who can apply?
All UK-CAB members are welcome to apply. Priority will be given to members who have not attended the training before.
You need to:

  • Have basic literacy levels and willing to learn new skills; this training will be the foundation.
  • Be keen, willing and committed to learn about HIV and science through writing, discussions, reading studies and scientific journals.
  • Be Willing to confront issues you are not confident with.
  • Comfortable with HIV status, active and with an interest in changing things.
  • Commitment to take on CAB patient representative roles. These include BHIVA committees, CAB steering group, clinical trials steering groups, Data and Safety Monitoring Board (DSMB), patient representative in clinics, commissioning groups, etc.

The training will cover:

  • Understanding trial design and research.
  • Science in research and meaning of evidence-based science.
  • How to read a scientific paper.
  • ABC of HIV – and treatment literacy.
  • ABC of good communication – public speaking at conferences to represent patient views.
  • Virology and immunology.
  • Personal development – assertiveness, interpersonal skills, how to apply these in daily life.
  • Health inequalities caused through poverty, and or other social issues.
  • NHS structures.

 

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Published: January 29, 2016

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