Positively involved poster at BHIVA/BASSH 2018

A study from the UK-CAB was presented as a poster at the 4th Joint Conference of the British HIV Association (BHIVA) with the British Association for Sexual Health and HIV (BASHH) in Edinburgh in April, 2018.

The research project – called ‘Positively Involved’ – looked at the impact of having community representatives on research and guideline writing groups. The study was a continuation of research completed in 2017 (and submitted as a poster abstract at the 23rd BHIVA conference in 2017).

The project was initiated by the UK-CAB Steering Group and the research conducted by Longret Kwardem and Robert James.

In 2017, the study interviewed doctors and researchers about their experiences of working with community representatives. The results showed that community representatives brought new and essential ideas and perspectives to this work and that this involvement contributed to better outcomes.

In 2018, the study interviewed community representatives about their experiences on various research and guideline writing groups. The results chimed with the 2017 findings. Additional benefits for representatives were also identified, such as, being able to ‘give back’ to the community or learn new skills.

Both studies concluded that people living with HIV must be directly involved in any decision-making that impacts on their treatment and healthcare, which is a key demand from the early days of HIV activism.

Both studies also reported a range of challenges and concerns – from increasing the diversity of community representatives to ensuring funding.

You can download the poster here.BHIVAPoster2018

Citations:
Kwardem L, James R, Shepherd J. ‘Positively involved: What impact do UK-CAB representatives on guideline writing committees and academic/clinical research study boards make?’ 4th Joint Conference of the British HIV Association (BHIVA) with the British Association for Sexual Health and HIV (BASHH); Edinburgh, UK, 2018.

Kwardem L, James R, Shepherd J. ‘What is the impact of having UK-CAB representatives on guideline writing committees and academic/clinical research study boards?’ 23rd Annual Conference of the British HIV Association; Liverpool, UK, 2017. Poster abstract available here.

Edit
Published: May 21, 2018
Last edited: May 27, 2018