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Online survey on HIV-related symptoms that vary over time- call for participants

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Sarah Radcliffe
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Posts: 50
Online survey on HIV-related symptoms that vary over time- call for participants
Posted on: February 16 2011, 01:29 pm

NAT (National AIDS Trust) are doing some research about the impact that HIV-related symptoms have on daily life, including work.  We are particularly interested in symptoms that are not constant, but vary over time. 
 
We have created a short (10 question) online survey about HIV-related symptoms for people living with HIV to fill in anonymously. The survey can be accessed here: http://www.surveymonkey.com/s/G89L86D
 
The findings of this research will help us advocate for the needs of people living with HIV who apply for illness and disability-related benefits.  In particular, it will inform our recommendations to the second annual independent review of the Work Capability Assessment (the second Harrington Review).  NAT have been asked to sit on a working group which will recommend changes to the Work Capability Assessment (WCA) to more accurately and fairly assess people with fluctuating conditions, such as HIV.
 
We would also welcome other evidence about the impact of fluctuating symptoms on the lives of people living with HIV, including case studies and details of other research in this area.  It would be particularly helpful to hear about the experiences of people who have HIV-related symptoms that vary who have applied for Employment and Support Allowance and gone through the WCA.
 
For more information about the survey or the working group, or to send case studies and other evidence, please contact Sarah Radcliffe on sarah.radcliffe@nat.org.uk.
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