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‘Confidentiality: your information, your rights’ – a new guide for HIV patients

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Tom Perry
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Posts: 2
‘Confidentiality: your information, your rights’ – a new guide for HIV patients
Posted on: July 9 2014, 04:28 pm

Today NAT publishes a new guide for people in England living with HIV, explaining how the NHS handles, stores and shares their personal confidential health information. The short booklet also explains patients’ rights in relation to their records and advice on how to raise questions or concerns.

The guide, endorsed by BHIVA (the British HIV Association), was developed following on from NAT’s 2014 report ‘HIV Patient Information and NHS Confidentiality’.

http://nat.org.uk/media/Files/Publications/Jan-2014-HIV-Patient-Confidentiality-NHS.pdf

In research for the report NAT consulted people living with HIV, asking them whether they had ever received any written information about their confidentiality rights in the NHS - 54% said no and 20% were not sure.

Of those who had received written information, 49% said it did not answer their questions, and 21% said it partly answered their questions.

Yusef Azad; “There is a strong call from people living with HIV for information that clearly explains what their rights are when it comes to confidentiality and what is happening with their data. We have created this resource to meet that need.”

Of course as appropriate verbal explanation is also necessary from clinic staff on how a service user’s personal confidential information is handled.  The guide may also be useful to support such conversations.

The guide can be downloaded from the NAT website:

http://nat.org.uk/media/Files/Publications/Confidentiality-July-2014_FINAL-1.pdf

The guide is also available for order as hard copies from our publications page:

http://www.nat.org.uk/Contact/Publication.aspx

For more information, please contact tom.perry@nat.org.uk
 
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