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Last Gift Study: End-of-Life HIV Research

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Paul Clift
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Posts: 467
Last Gift Study: End-of-Life HIV Research
Posted on: June 27 2017, 09:20 am

Fascinating intro to the question of terminally ill people taking part in HIV research:

"Few opportunities currently exist for terminally ill people to participate in HIV research as a result of various cultural taboos and ethical concerns, such as exploitation, vulnerability, and coercion. However, when faced with their approaching death, some individuals may be willing to participate in research that offers no hope for their condition to leave a final gift to their community.

In the first of a 3-part series, Sara Gianella Weibel, MD, on behalf of Infectious Disease Advisor, talks with Davey Smith, MD, professor of medicine and head of the Division of Infectious Disease at the University of California, San Diego, about ethical concerns and practical barriers in end-of-life research and how this type of research could be an important tool to advance the field of HIV cure" http://www.infectiousdiseaseadvisor.com/hivaids/last-gift-study-hiv-end-of-life-research/article/670036/

And a participant's perspective on End-of-Life HIV Research: http://www.infectiousdiseaseadvisor.com/hivaids/participants-perspective-hiv-end-of-life-research/article/670038/
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