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In-patient wards - quick question

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Paul Clift
Member
Posts: 446
In-patient wards - quick question
Posted on: February 22 2018, 10:01 AM

Dear All

A doctor has just asked me if HIV patients who are admitted to in-patient care in a hospital ward prefer being in a general ward, where they receive proper care/treatment under the HIV specialist docs, or prefer being in a separate room or side-ward away from general patients. I'm interested to know your thoughts - general ward or separate space?

Thank you!
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UK CAB Moderator
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Posts: 823
Re: In-patient wards - quick question
Reply #1 on: February 22 2018, 10:43 AM

Hi Paul,

Interesting question. 
My HIV clinic at North Middlesex Hosp used to have its own ward which was closed down as there were less patients being admitted.  Patients are currently admitted in general wards.  Early feedback (3+ years ago) was that patients felt very uncomfortable as some nurses on those wards were not well trained.  This was raised at a patient forum meeting and was addressed, we have had no complaints - so yes most patients are happy in a general ward.  One of my colleagues from the forum had a long stay in hospital due to other health problems and was always cheerful and happy with her care in a general ward. 

Personally - I have been admitted in the Royal Free a few times and always in the general ward.  All the nurses, doctors and carers are wonderful.  My HIV status is never an issue.  While recovering after my transplant, a lot of trainee doctors visited and each one wants to hear your full story, which I am happy to share.

So bottom line for me - I am happy to be treated with general patients.

Thanks, Memory
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Angelina Namiba
Member
Posts: 62
Re: In-patient wards - quick question
Reply #2 on: February 22 2018, 11:00 AM

Dear Paul
Interesting question indeed.

I have over the years, visited many women who have been admitted to general wards, mostly maternity and have not heard of any negative experiences.
The only not so good experiences were from many years ago, where some mums said confidentiality was not maintained as it should be, with some nurses saying things like - AZT for baby in bed such and such, or sometimes HIV status being inadvertently revealed to visiting relatives who were not aware of the patient's status, by nurses/midwives referring to it in-front of visitors. Though this usually happened only when patients had not expressly said to HCPs that they should not mention their status in front of visitors. Where this has been communicated, it doesn't happen.
Having said that though, majority of the women I have been in contact with who were admitted to general wards more recently have not had any complaints.
Personally, I would be happy to stay in a general ward.
KR
Angelina
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Ben Cromarty
Member
Posts: 424
Re: In-patient wards - quick question
Reply #3 on: February 22 2018, 12:14 PM

Tricky...it depends, maybe? If it's something where HIV is very much a second-order issue, then general...but if it is complex and HIV has a bigger role to play...then I'd want much more involvement of the HIV team...but that need not necessarily mean a separate ward....

So for example...I know a case where someone living with HIV went in for a minor op, nothing HIV-related....and although the care was excellent and the nurses lovely, there were some things that were less comfortable...loud conversations with things like " can he use the same cutlery as everyone else?"... But this was years ago, and I'm sure things are better now!
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Fernando Monteiro
Steering group
Posts: 15
Re: In-patient wards - quick question
Reply #4 on: February 22 2018, 01:15 PM

As long as confidentiality is assured and ward staff is trained in HIV related issues, like stigma, a donít see a problem. In my hospital, Chelsea and Westminster, the HIV ward has been used for cancer patients and HIV. And when beds are free, for whoever needs them.
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Abosede Obadeyi
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Posts: 2
Re: In-patient wards - quick question
Reply #5 on: February 22 2018, 01:22 PM

I will prefer an hiv ward
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UK CAB Moderator
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Posts: 823
Re: In-patient wards - quick question
Reply #6 on: February 22 2018, 03:58 PM

Hi Paul,
Here is a response from Larry Gurney
------
I have been isolated off several times often resulting in a half arsed barrier nursing in wards different to the speciality. Once left three days without seeing a Dr with a bucket and flush. Told that all blood born viruses are isolated as hospital trust policy. Then when I moved south the situation was so beautifully different I thought myself in a new country. I was on a general ward it made me feel normal. A rare thing with hiv for 25 years. It was wonderful to be able to chat and communicate with others and the whole experience positive and best for wellbeing and recovery.  This country exists in two parallel states the north of England is grimy and prejudicial and they clearly have institutional discrimination. The South of England are understanding and allow a person dignity to exist.   The north is killing me medically so much so that I have for the last two weeks been seriously considering giving up on treatment and giving up. Whenever I have been admitted here it simply adds to the compartmentalised division the mismatch of the idea that hiv is a manageable long term condition whilst attitude is still no further forward than 30 years ago. Sorry those are my thoughts at the moment on this issue. Dr Larry gurney
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john@tcell.org.uk
Member
Posts: 135
Re: In-patient wards - quick question
Reply #7 on: February 22 2018, 06:03 PM

I think if I were in for a HIV related issues I would prefer to be on a HIV ward.  Chelwest has one and my experience has been rather poor if you are placed in the general ward situation.  It seems from reading the other comments that different hospitals have different models.  Chelwest has changed in many ways since I was an inpatient last.  The issue I have with your statement Paul is that I have not personally experienced good/care treatment under HIV Doc's on a general ward. This is not because of a deficency of the HIV specialists but the other ward staff who organise medications/tests etc .. .
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Paul Clift
Member
Posts: 446
Re: In-patient wards - quick question
Reply #8 on: February 26 2018, 11:08 AM

Thanks for comments - a very interesting spread of views and experiences.
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