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Your Life. Your Treatment.

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Elijah Amooti
Member
Posts: 158
Your Life. Your Treatment.
Posted on: March 30 2009, 03:16 pm

Hello   UKCAB  Members

Hope you  are  all  well  .
The Your Life. Your Treatment programme can help you take control of your HIV treatment and help you live the life you want to.
This  web  is  very  good  for  Community  HIV Treatment  information  Providers.
click  on the  link  below  to obtain more  info.

http://www.yourlifeyourtreatment.com/index.html

See   you and   enjoy  BHIVA  those  who  are  attending.
Good Day
Elijah
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Simon Collins
Global Moderator
Posts: 651
Re: Your Life. Your Treatment.
Reply #1 on: March 31 2009, 12:50 pm

How do people feel about pharma companies producing general information for patients?

While most of them do this to some degree, I rarely find it provides anything that is comparable or better than community-produced resources, and there is always going to be a problem with conflict of interest.

I cannot think of a time when I have ever recommended pharma-generated resources to HIV-positive people.

Also, how do you feel about a website that has the following 'terms and conditions'? Note that theser are too long to fit into the 10,000 character limit for CAB posts!

http://www.yourlifeyourtreatment.com/terms.html

Terms and Conditions
Acceptance of Agreement. Your access to and use of this web site and related e‑mails (the "Site") is subject to the following terms and conditions and all applicable laws. By accessing and browsing the Site, you accept and agree to, without limitation or qualification, the terms and conditions and acknowledge that any other agreements between you and Bristol‑Myers Squibb Pharmaceuticals Limited ("Bristol‑Myers Squibb", "we" or "us") are superseded and of no force or effect with respect to your access and use of the Site.

Scope of Use. Bristol‑Myers Squibb maintains the Site for your personal information, education, and communication. This site is provided by Bristol‑Myers Squibb as an educational service for the general public, patients and patient associations and is intended for United Kingdom residents only. The opinions and recommendations expressed by any visitors to the Site represent those of individuals, and are not intended as endorsement or recommendation by Bristol‑Myers Squibb (including of any particular product or services). Please feel free to browse the Site. You may download material displayed on the Site for non‑commercial, personal use only, provided you maintain all copyright and other proprietary notices contained on the materials. You may not, however, distribute, modify, transmit, reuse, repost, or use the content of the Site for public or commercial purposes, including the text and images, without Bristol‑Myers Squibb's written permission. You understand that Bristol‑Myers Squibb makes no representation that the information in the Site is appropriate or available for use in locations outside of the United Kingdom, for use by parties other than the intended audiences for each section of the Site, and access to the Bristol‑Myers Squibb Site from territories where the content of the Site may be illegal or inappropriate is prohibited. You should not construe anything on the Site as a promotion or solicitation for any product or service or for the use of any product or service that is not authorized by the laws and regulations of the country where you are located, including the United Kingdom. Those who choose to access the Site from other locations do so on their own initiative and are responsible for compliance with applicable local laws.

Medical Advice. Bristol‑Myers Squibb is not engaged in rendering medical or similar professional services or advice, and the information provided on the Site is not intended to replace medical advice offered by a health care professional. If you desire or need such services or advice, you should promptly consult a physician or healthcare professional.

Copyright Protection. You should assume that everything you see or read on the Site is copyrighted, unless otherwise noted, and may not be used except as provided in these terms and conditions or in the text on the Site without the written permission of Bristol‑Myers Squibb. Bristol‑Myers Squibb neither warrants nor represents that your use of materials displayed on the Site will not infringe rights of third parties not owned by or affiliated with Bristol‑Myers Squibb.

Trademarks. The trademarks, trade names, logos, and service marks (collectively the "Trademarks") displayed on the Site are registered and unregistered Trademarks of Bristol‑Myers Squibb, its global affiliate companies or others third parties. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use any Trademark displayed on the Site without the written permission of Bristol‑Myers Squibb or such third party that may own the Trademarks displayed on the Site. Your use of the Trademarks displayed on the Site, or any other content on the Site, except as provided in these terms and conditions, is strictly prohibited. You are also advised that Bristol‑Myers Squibb will aggressively enforce its intellectual property rights to the fullest extent of the law, including the seeking of criminal prosecution.

Exclusion of Warranty. While Bristol‑Myers Squibb uses reasonable efforts to include accurate and up-to-date information in the Site, Bristol‑Myers Squibb makes no warranties or representations as to its accuracy. Bristol‑Myers Squibb assumes no liability or responsibility for any errors or omissions in the content of the Site. Without limiting the foregoing, everything on the Site is provided to you "AS IS" WITHOUT WARRANTY OF ANY KIND, EITHER EXPRESSED OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, THE IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE OR NON-INFRINGEMENT. Please note that some jurisdictions may not allow the exclusion of implied warranties, so some of the above exclusions may not apply to you. Check your local laws for any restrictions or limitations regarding the exclusion of implied warranties.

Limitation of Liability. Your use of and browsing in the Site are at your risk. Neither Bristol‑Myers Squibb nor any other party involved in creating, producing, or delivering the Site is liable for any direct, incidental, consequential, indirect, or punitive damages arising out of your access to, or use of, the Site. Bristol‑Myers Squibb assumes no responsibility, and shall not be liable for, any damages to, or viruses that may infect, your computer equipment or other property on account of your access to, use of, or browsing in the Site or your downloading of any materials, data, text, or images from the Site.

Prohibited Transmissions. Certain areas of the Site may enable you to access online forums and to submit e-mails, or otherwise provide feedback to Bristol‑Myers Squibb. Bristol‑Myers Squibb does not endorse, and specifically disclaims, any responsibility or liability for any content in these fora. You may not post or transmit any unlawful, threatening, libellous, defamatory, obscene, indecent, inflammatory, pornographic or profane material or any material that could constitute or encourage conduct that would be considered a criminal offence, give rise to civil liability, or otherwise violate any law. In addition, you are prohibited from posting or transmitting any information which (a) infringes the rights of others or violates their privacy or publicity rights, (b) is protected by copyright, trademark or other proprietary right, unless with the express written permission of the owner of such right, (c) contains a virus, bug or other harmful item, or (d) is used to unlawfully collude against another person in restraint of trade or competition. You shall be solely liable for any damages resulting from any infringement of copyright, trademark, or other proprietary right, or any other harm resulting from your use of the Site.

User Submissions. The opinions and recommendations expressed by any visitors to the Site represent those of individuals, and are not intended as endorsement or recommendation by Bristol‑Myers Squibb (including of any particular product or services). Any "personally identifiable information or personal data" transmitted to the Site is governed by the Site's Privacy Policy. On the other hand, any communication or material you transmit to the Site that does not contain personal data by electronic mail or otherwise, including any data, questions, comments, suggestions, or the like is, and will be treated as, non-confidential and non‑proprietary. Except for personal data which will be governed by the Site's Privacy Policy, you understand that anything you transmit or post may be used by Bristol‑Myers Squibb or its affiliates for any purpose, including, but not limited to, reproduction, disclosure, transmission, publication, broadcast, and posting. Furthermore, Bristol‑Myers Squibb is free to use any ideas, concepts, know-how, processes, or techniques contained in any communication you send to the Site for any purpose whatsoever including, but not limited to, developing, manufacturing, marketing, and selling products and service using such ideas, concepts, know-how, processes, or techniques.

Links to Other Sites. Provision of a link to any other web site that is not controlled by Bristol‑Myers Squibb is for your convenience only and does not imply an endorsement or recommendation by Bristol‑Myers Squibb of such other third party web site or location. Bristol‑Myers Squibb has not reviewed all of the sites linked to the Site and is not responsible for the content of any off-site pages or any other sites linked to the Site. Your linking to any other off-site pages or other sites is at your own risk. Once you link to another site, please be sure to review the legal terms and privacy policy of the new site. It may be different from those governing the Site.

Governing Law. This agreement and its performance shall be governed by the laws of England and Wales, without regard to its conflict of laws provisions. You consent and submit to the exclusive jurisdiction of the courts located in England, in all questions and controversies arising out of your use of the Site and this Agreement. To the extent allowed by applicable law, any claim or cause of action arising from or relating to your access or use of the Site must be brought within two (2) years from the date on which such claim or action arose or accrued.

etc, etc

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Paul Clift
Member
Posts: 467
Re: Your Life. Your Treatment.
Reply #2 on: April 1 2009, 09:25 am

Simon - er... thanks for the lengthy quote! Point nicely made though, and my own preference (formerly at Brighton, currently at King's) is for peer-reviewed community-produced materials. These have two big advantages: they are free from conflict of commercial interest, and they are produced by - or in the very closest co-operation with - people with HIV who have 'lived experience' of the topics they discuss.

The main point in favour of this BMS website is that it is easy to navigate, looks clear and visually 'clean'. But as you say, Simon, that is not enough. So while this site does set an example of web production that we could well aspire to, I would find it difficult to recommend.
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Ben Cromarty
Member
Posts: 451
Re: Your Life. Your Treatment.
Reply #3 on: April 6 2009, 03:00 pm

The information given is reasonably good and very general...but (unless I missed it somewhere) doesn't actually tell you anything about how the success of the treatment is monitored and measured - getting down viral load to non detectable, increasing CD4 and monitoring for any adverse side effects on liver, kidneys, cardiovascular and so forth. Perhaps this was felt to be too complex...
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