UK-CAB 32 Friday 22 January 2010

Advocacy training day

At the MRC Clinical Trials Unit, 222 Euston Road, London, NW1

UKCAB is having an Advocacy training day on 22 January 2010. This is a response to the feedback from a survey last year and some feedback from meetings where members have expressed a lack of confidence as a reason for not engaging in forum discussions. This will be a back to basics meeting for new members to become more confident advocates, so...

'Yes you can!' à la Obama: Think you don't have the skills to be a patient advocate? You probably do. Come along to UKCAB's Advocacy Training Day and learn how to speak up for yourself and members of your community.

Programme

10:00 -10:05
Setting the scene for the day:

Aims, expectations

10:05 -11:00
UKCAB
Simon Collins

An open discussion on the current CAB and its approach. All participants should be able to say a little about their history of involvement and goals for the future.

How it started
What we do:

Community representation on Steering Committees, PCT, Trusts, BHIVA, etc. Responsibilities, networks, dissemination of information and how you are supported

How we do it
Strengths and weaknesses
Denver principles

11:00 -11:15
Break

11:15 - 12:30
Confidence building workshop
Silvia Petretti

Improving confidence through knowledge
Challenging experts and status quo
Support for your own care

12:30 - 14:00
Lunch

Afternoon session: Skill-building session:

14:00 -14:45
Advocacy Experiences

i-Base treatment advocates training model - Winnie Sseruma
Speaking on social issues - Godwyns Onwuchekwa
Working as a advocate - Emma Hudson

15:00 - 15:15
NHS structures in the UK:
Paul Clift/Matthew Williams

Primary and secondary care explained
HIV in the UK - accessing care
Polyclinics - effect on HIV care
HIV Consultant and HIV Doctor - who's who?

15: 15 - 15:30
Getting other advocates involved
Paul Clift

Forming a patient forum

15:30 - 16:00
What next - active involvement:

Continued engagement of individuals and organisations:

Advocacy - definitions, usefulness, limitations
How do we keep everyone involved and supported?
Issues for volunteers vs staff.
What can we ask of arganisations, including the UKCAB?