UK Community Advisory Board (UK-CAB)
Celebrating 18 years of HIV treatment advocacy

The UK-CAB is a network for community HIV treatment advocates

Advocacy

The UK-CAB is a network for community HIV treatment advocates across the UK

 Training

We provide peer-led training on HIV treatment

Representation

We ensure people living with HIV are represented at all levels of our care

Join the UK-CAB

The UK Community Advisory Board (UK-CAB) is a peer-led network which aims to empower people living with HIV and those supporting them with the knowledge, information and skills to become effective HIV treatment advocates for their own health and that of their peers living with HIV. 

It is important that people living with HIV understand the treatment options available to them, and are able to make informed and effective choices in partnership with their HIV clinician. We advocate for the meaningful involvement of people living with HIV in all aspects of our care, and work closely with partners across the HIV sector, especially the British HIV Association, to make sure this happens.

It is easy to join the UK-CAB. Membership is free and open to anyone living with HIV and community advocates interested in our work who are not directly connected to pharmaceutical companies.

Latest updates

2021 Online Training Programme

If you are new to the HIV sector, if you don’t have the opportunity to attend meetings or training sessions during the working day, or if you just want to improve your knowledge, the 2021 online training programme is for you.  It could help to clarify some things you don’t understand, so you are able to follow the latest developments and treatments, and give you an overview of the history of HIV activism.

Read More

UK-CAB 74: Meeting with MSD

Friday 16 October 2020 Zoom virtual meeting Programme 13.25 – Zoom meeting open 13.30-14.00 – MSD pre-meeting (Ben Cromarty) 14.00-15.30  – MSD company meeting 15.30-15.45 – UK-CAB internal meeting Slides+ Read More

Read More
Upcoming

Meetings and training events

June 2021
Jun 11
11 June 2021
Theratechnologies company meeting
Virtual Meeting,

13.55 – Zoom meeting open
14.00-15.30 – Introduction to Theratechnologies
15.30-16.00 – UK-CAB internal meeting

July 2021
Jul 30
30 July 2021
MSD (to be confirmed)

Our 

Story

On 31 May 2002, 25 advocates from across the UK met in London for the first meeting of the UK-CAB. A dedicated group of treatment activists had been looking at the European Community Advisory Board (ECAB) and its work on improving access to new drugs (normally six months behind the USA) and decided the UK would benefit from a forum where patient and community groups could meet formally with researchers or pharma companies.

The meeting introduced the concept of Community Advisory Boards to its inaugural members and outlined the intention and purpose of the network. The first guest speakers were Tim Peto and Douglas Newberry from the Medical Research Council, who explained how clinical trials work.

In the afternoon the first company meeting was held with Gilead Sciences, and tenofovir disoproxil fumarate was one of the drugs discussed with the CAB – a drug that continue to be discussed amongst members to this day.

Many things have changed since 2002, and the CAB was there to witness and scrutinise many of the treatment interventions which have changed HIV over the past 18 years: the first results of once daily pills; PrEP (pre-exposure prophylaxis) was first formally added to a meeting agenda in 2008 – but we had to wait until 2020 for routine commissioning to be given the green light in England?

People living with HIV in the UK owe a huge thanks to all the dedicated people who founded the CAB, and the members who are the voice of the community in our meetings, and those who act as community representatives in research, writing guidelines and various clinical working groups.

Thank you to all our members who have played a part in ensuring our voice is heard in our treatment and care.

Key Resources

Factsheets

Denver principles (1983)

An early founding document for HIV activism.

Guide for HIV community advocates

Becoming an advocate, goals, tips and tactics, working in meetings, working with experts.

Is a clinical trial right for me?

Questions to ask when thinking about taking part in a clinical trial

Watch latest video

Play Video

Latest COVID-19 Information

Dr Laura Waters talks to members about

 COVID-19 vaccines and HIV

What our members say

Meet Our Team

UK-CAB Steering Group

Alex Sparrowhawk

Alex Sparrowhawk

Chair, UK-CAB

Memory Sachikonye

Memory Sachikonye

UK-CAB Coordinator

Nicoletta Policek

Nicoletta Policek

UK-CAB Steering Group

Richard Desmond

Richard Desmond

UK-CAB Steering Group

Husseina Hamza

Husseina Hamza

UK-CAB Steering Group

Jo Josh

Jo Josh

UK-CAB representative on BHIVA executive committee

Ben Cromarty

Ben Cromarty

UK-CAB Steering Group

LeaSuwanna Griffith

LeaSuwanna Griffiths

UK-CAB Steering Group